Brian is father to James who has Cerebral Palsy. He is responsible for the overall management of the organisation and has particular responsibility for strategic planning, project development, evaluation, fundraising and communications.
Donna is mum to Eddie and Joe who has High Functioning Autism. She manages the day-to-day operations of the charity and has particular responsibility for staff management, administration & HR, operational planning and policy.
Michele has two children Alana who was born with an extremely rare
genetic condition, Trisomy 9 Mosaicism and Maia. She is an Associate
of the Chartered Institute of Personnel and Development.
Rebecca has two teenage children, Beth and Thomas who was diagnosed with High Functioning Autism aged 13. Rebecca also works as a registered childminder, freelance early years trainer and writer. She is a qualified teacher and and early years professional.
Hannah is mum to Ella and Samuel who has High Functioning Autism with Demand Avoidant Behaviour. She is a former nurse and midwife. Having devoted 5 years exclusively to being a parent-carer she empathises with the struggles and isolation that being a parent-carer experience and is passionate about reducing this for other families.
Rachel is mother of two girls, Poppy and Lois. Her background is in HR, specifically recruitment in the voluntary sector. After having her first daughter she moved into family liaison with national charity, Cool2Care, where she worked with families to recruit PA’s and buddies.
Kirsty is Mum to Alexander, who passed away in September 2018 at six years old. Alexander had a rare condition and very complex health needs and disabilities. Kirsty is a qualified accountant and passionate about making a difference to families of children with SEND.
Helen has worked with children with disabilities and their families since 1995. She worked for 14 years within the Health Service as Thera-playgroup co-ordinator at Chichester Child Development Centre and is now Director of 'Arc Autism Advice'.
Maria is mother to three children, including Leo who has Down Syndrome. For ten years she was the Finance Director of a specialist insurance and financial services broker which she co-founded and which now has offices across England, the United States and Canada.
John is father of John who has Autism. John senior works in tour management and logistics in the music industry and has worked for some of the world’s best known artists. He has an MBA from Kingston University.
Jo is a mum to 3 children, Imogen age 6 Archie age 3 and Zachary age 2. Imogen and Zachary have the rare genetic condition Cystic Fibrosis. Jo is a passionate advocate and fundraiser for Cystic Fibrosis and more generally, parents of children at mainstream schools.
Laetitia is a mum to Pierre who is 11 years old. Pierre has Autism and speech delay. Laetitia is an administrator at CAPITA/WSCC Partnership but also works with Pierre after school and during holidays on his ABA programme. Laetitia is also very passionate about Autism awareness raising and would like to see more provision and opportunities put in place for post 16 children/adults with special needs in the County.
Born with Cerebral Palsy and a wheelchair user for over 20 years, Chris is Managing Director of Bascule Disability Training, a social enterprise specialising in disability awareness. Chris is also former Chairman of Enable Me, a local disability awareness charity as well as Director/Governor of Great Ballard School, a co-educational 2-13 prep school in Eartham near Chichester.
Charlotte works for West Sussex County Council as a Child & Family Worker in the Child Disability Team. She is an experienced care worker and has worked in the education, local authority and voluntary sectors. Charlotte grew up with her brother Phillip who had Cerebral Palsy and takes a special interest in support for siblings of disabled children.
Picture courtesy of Sussex Community Foundation